6th May 2025 Global Survey from World Lupus Federation Finds Nearly Half of People with Lupus Report Kidney Involvement New data highlights urgent need for improved education and diagnosis of lupus nephritis (lupus-related kidney disease), a serious complication of lupus The Lupus Association of NSW, through the World Lupus Federation, is sharing new findings…
Details5th May 2025 We’re just one week away from the Lupus Foundation of America’s 2025 National Lupus Advocacy Summit, the nation’s largest lupus advocacy event! One of the best parts about this year’s Summit is that no matter where you are in the world, you can participate to help your elected representatives understand the importance…
Details7 March 2025 Global Survey on Lupus and the Body, Including Kidney Impact The World Lupus Federation (WLF) and lupus organizations worldwide are conducting the 2025 Global Lupus Patient Survey: Lupus and the Body, Including Kidney Impact to better understand how lupus affects the body, particularly the kidneys. This survey also explores people’s knowledge of…
Details10 December 2024 Latest Research Opportunity The efficacy of prebiotics and probiotics in reducing ocular signs and symptoms of immune disease-related dry eye. Researchers at UNSW, Sydney (The University of New South Wales) are seeking volunteer research participants to learn about the effect of probiotics and prebiotics on immune disease-related dry eye. Probiotics are live…
Details6th May 2024 World Lupus Federation Global Survey Finds 91% of People with Lupus Report Using Oral Steroids to Treat Lupus A recent global survey conducted by the World Lupus Federation reported that 91% of survey respondents were taking or have taken oral steroids to treat their lupus. Over 7,700 people living with lupus from…
Details26 April 2024 PBS listing of Saphnelo At the March 2024 meeting, the PBAC has recommended the PBS listing of Saphnelo for patients with severe SLE with high disease activity despite standard of care. AstraZeneca is working with the Department of Health to finalise the next steps to enable a timely PBS listing. The Saphnelo…
Details23 March 2024 Research Opportunity Researchers at UNSW Sydney (The University of New South Wales) are seeking volunteer research participants to learn about the impact of probiotics and prebiotics on signs and symptoms of Sjögren’s syndrome-related dry eye (primary and secondary Sjögren’s syndrome). The study might be a good fit for you if: Are aged…
DetailsWorld-first discovery may enable an effective long-term lupus treatment 06 February 2024 Two years away from clinical trials, the method targets the T-cell in the immune system – offering patients the possibility of a treatment beyond medication and its side effects. Australian researchers have worked out how to fix a defect that causes lupus, and…
DetailsGlobal Survey on Access to Care for People with Lupus The World Lupus Federation (WLF) has created a survey alongside lupus organizations around the globe focusing on access to care for individuals with lupus. The survey aims to better understand challenges to access to care and lupus treatments, as well as raise global awareness of…
DetailsLupus Clinical Trial Awareness in Australia Help Advance Lupus Drug Development Many people diagnosed with lupus still have symptoms despite being treated by their doctor. If you have active discoid and/or subacute cutaneous lupus erythematosus (DLE and/or SCLE), you can volunteer to take part in a research study currently enrolling adult participants. Participants who take…
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