The 16th Annual Observance of World Lupus Day will be held on Friday, 10 May.  Nearly 250 nonprofit lupus patient organizations have banded together to combat this serious and incurable autoimmune disease that affects more than five million people worldwide.  In support of this annual observance, the World Lupus Federation offers the following position statement as a rallying cray for people with lupus to engage in this important awareness campaign …

Let’s Join Together to Fight Lupus

We are a network of more than five million people around the world who are living with lupus. And while lupus is a severe and life-changing autoimmune disease that can affect any organ system in the body, we refuse to let lupus define us.

We are fighters — passionate and dedicated — who have chosen to join forces with our families, doctors, medical researchers, government leaders, and caring people like you to fight lupus.

We are warriors — determined to bring an end to the devastating impact of lupus. We will not quit until we secure a better quality of life for all people with lupus, their families, and future generations so that everyone can live well in a world without lupus.

To win this battle, more people around the world must join our fight. The first step begins with education. Knowledge is a powerful tool that can defeat lupus. Knowledge can help those who are looking for answers and provide support and hope to people who struggle with lupus every day.

Knowledge also can rally people to our cause. With knowledge, they can take actions to increase awareness, raise money for research, and encourage government leaders to do everything they can to help people with lupus.

There is more you need to know about lupus. Learn everything you can. Share your knowledge with others. Urge them to help us defeat this terrible disease.

Let’s join together to defeat lupus in our lifetime.

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Whereas, lupus is a serious and incurable autoimmune disease that can cause life-threatening damage to any organ in the body; and,

Whereas, lupus is a global health problem that affects millions of young women, men and children of all nationalities, races, ethnicities, genders and ages worldwide; and

Whereas, many physicians worldwide are unaware of the symptoms and health effects of lupus, causing people with lupus to suffer for many years before they can obtain a correct diagnosis and medical treatment; and

Whereas, medical research efforts into lupus and the discovery and development of safer, more effective treatments for lupus patients are under-funded in comparison with diseases of similar magnitude and severity; and

Whereas, people with lupus will face a lifetime of living with the unpredictable and life-changing health effects of this disease; and,

Whereas, there is a deep, unmet need worldwide to educate and support individuals, families and caregivers affected by lupus; and

Whereas, there is an urgent need to increase awareness in communities worldwide of the devastating impact of lupus,