World Lupus Day Messages Reach Millions of People around the Globe
World Lupus Day 2017 was a big success. The hashtag #WorldLupusDay generated 44.5 million impressions. More than 6,200 individuals made 14,300 posts on social media during World Lupus Day. A search on Google returned more than 4.000 web pages with references to World Lupus Day.
“Lupus Knows No Boundaries e-Report”
The World Lupus Federation wishes to say thank you to GlaxoSmithKline and So What Global for working with us to produce the first-ever e-report on lupus. The e-report tells the story of people living with lupus and those who treat and care for them. More than 10,000 people viewed the e-report page on the World Lupus Day website.
The 37-page e-report includes comments by 22 people from 14 countries on six continents. The document includes 11 videos, 30 illustrations, 70 photos, and more than 10,000 words of text.
Share the e-Report
The e-report is available online at www.worldlupusday.org/e-report.html. Please post a link to the report on your organization’s website, Facebook page or your Twitter feed. Also please consider including the link in your next newsletter or email communications. Share a copy of the e-report with your members, trustees, news reporters, government officials, doctors, researchers and other health professionals.
You can download a PDF copy of the e-report by clicking on the download icon that appears within the black bar located at the bottom of the e-report page on the World Lupus Day website. Also on this bar, you will see icons to share the report on Facebook and Twitter or to send a link to a friend though email.
Presently the e-report is only available in English. You can download the text of the e-report for translation into your native language by following the link which appears below:
https://ws.onehub.com/folders/z1xxdkm3
Twitter Chat
Recently, the World Lupus Federation participated in a #LupusChat on Twitter with @GSK and @TiffanyandLupus to discuss the results of our recent Twitter Poll. You can read a transcript of the #LupusChat by clicking on the link below. Please consider sharing this link on your website, Facebook page, or by sending a Tweet on your Twitter Channel. You also can include the link in an email message to your constituents.
https://storify.com/TiffanyAndLupus/challenging-misconceptions-breaking-down-barriers-
Send Links to News Stories
Please send to me links of online news stories about your organization’s World Lupus Day activities. I will include the links on the World Lupus Day website beginning in June. Also, send to me pictures of your Word Lupus Day activities. I will post the pictures on the World Lupus Federation Facebook page at facebook.com/worldlupusfederation and on our Twitter channel @WorldLupusFed.
Please follow us on Facebook and Twitter so we can stay connected and share information.
Thank you for helping to make World Lupus Day 2017 a big success!
