World Lupus Day Messages Reach Millions of People around the Globe
World Lupus Day 2017 was a big success. The hashtag #WorldLupusDay generated 44.5 million impressions. More than 6,200 individuals made 14,300 posts on social media during World Lupus Day. A search on Google returned more than 4.000 web pages with references to World Lupus Day.
“Lupus Knows No Boundaries e-Report”
The World Lupus Federation wishes to say thank you to GlaxoSmithKline and So What Global for working with us to produce the first-ever e-report on lupus. The e-report tells the story of people living with lupus and those who treat and care for them. More than 10,000 people viewed the e-report page on the World Lupus Day website.
The 37-page e-report includes comments by 22 people from 14 countries on six continents. The document includes 11 videos, 30 illustrations, 70 photos, and more than 10,000 words of text.
Share the e-Report
The e-report is available online at www.worldlupusday.org/e-report.html. Please post a link to the report on your organization’s website, Facebook page or your Twitter feed. Also please consider including the link in your next newsletter or email communications. Share a copy of the e-report with your members, trustees, news reporters, government officials, doctors, researchers and other health professionals.
You can download a PDF copy of the e-report by clicking on the download icon that appears within the black bar located at the bottom of the e-report page on the World Lupus Day website. Also on this bar, you will see icons to share the report on Facebook and Twitter or to send a link to a friend though email.
Presently the e-report is only available in English. You can download the text of the e-report for translation into your native language by following the link which appears below:
Recently, the World Lupus Federation participated in a #LupusChat on Twitter with @GSK and @TiffanyandLupus to discuss the results of our recent Twitter Poll. You can read a transcript of the #LupusChat by clicking on the link below. Please consider sharing this link on your website, Facebook page, or by sending a Tweet on your Twitter Channel. You also can include the link in an email message to your constituents.
Send Links to News Stories
Please send to me links of online news stories about your organization’s World Lupus Day activities. I will include the links on the World Lupus Day website beginning in June. Also, send to me pictures of your Word Lupus Day activities. I will post the pictures on the World Lupus Federation Facebook page at facebook.com/worldlupusfederation and on our Twitter channel @WorldLupusFed.
Thank you for helping to make World Lupus Day 2017 a big success!