Celebrate World Lupus Day

The World Lupus Federation invites everyone around the world to participate in the annual observance of World Lupus Day on 10th May.

A global health problem, lupus affects people of all nationalities, races, ethnicity, gender and age. Lupus can affect any part of the body in any way at any time, often with unpredictable and life-changing results. While lupus knows no boundaries, knowing all you can about lupus can help control its impact. Read the 2019 Manifesto.

To take part in the global effort to raise awareness and critical funding for lupus research and programs please use the following link to the World Lupus Day website.

Coronavius (COVID-19)

For the latest  information available on this general topic, please use the following link to the Australian Government Department of Health.

 

If you would like to get in contact with us concerning this issue please either:

Phone: (02) 9878 6055 or
Email: info@lupusaust.org.au

Access to Hydroxychloroquine for People with Lupus

The Lupus Association of NSW is aware of the potential use of hydroxychloroquine and chloroquine for the treatment of coronavirus (COVID-19). This means that some people with Lupus who use hydroxychloroquine to manage their condition are having difficulty accessing this medication.

Hydroxychloroquine, a medication taken by approximately 90% of lupus patients to control their condition has received a lot of recent media attention as one of the drugs being trialled as a potential treatment for the coronavirus (COVID-19).

Hydroxychloroquine and chloroquine are anti-malarial medicines that can also be effective for people with rheumatoid arthritis and lupus. Both drugs have an anti-inflammatory effect and can be helpful in treating joint inflammation and skin.

The effectiveness of these drugs has yet to be established. In the meantime, doctors are being urged to prescribe hydroxychloroquine only for approved indications. People may want to consider contacting their pharmacist to order their medications a week or two in advance of running out.

Read more……..

New restrictions have also been placed on the use of hydroxychloroquine, by the Therapeutic Goods Administration (TGA) from the 24th March, to limit the availability to currently approved indications.

Read more……..

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Resources

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Better Living

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Global Lupus

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Support

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Show You Care

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Helping Others

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