New World Lupus Federation Global Survey Finds 58% Know Very Little or Nothing About Lupus
Low familiarity and ongoing misconceptions underscore the need for increased education and broader visibility, building on more than a decade of progress.
The World Lupus Federation (WLF) today released new global survey results on public awareness, attitudes, and perceptions of lupus ahead of World Lupus Day (May 10, 2026). The data shows that 58% of respondents worldwide still know little or nothing about lupus – a gap that directly impacts those living with the disease.
The key findings from the survey, conducted by the World Lupus Federation (WLF) across the United States, Europe, South America, Africa, and Asia, revealed that 58% of respondents worldwide know very little or nothing about lupus. While progress has been made in recognizing some common symptoms, the findings highlight a significant gap in understanding the seriousness and complexity of this disease.
Other key findings include:
- 48% do not know or are unsure that lupus can affect any organ in the body
- 46% are unaware that lupus can be fatal
- 41% don’t know or are unsure that symptoms can vary
- 19% incorrectly believe lupus to be contagious
These findings underscore the urgency of continuing to raise awareness and education about lupus among the general public and the medical community.
For a deeper look into the full results of the survey, read the white paper
