Update – Access to Hydroxychloroquine

Access to Hydroxychloroquine for People with Lupus The Lupus Association of NSW is aware of the potential use of hydroxychloroquine and chloroquine for the treatment of coronavirus (COVID-19). This means that some people with Lupus who use hydroxychloroquine to manage their condition are having difficulty accessing this medication. Hydroxychloroquine, a medication taken by approximately 90% of…

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COVID-19 & Access to Hydroxychloroquine

COVID-19 & Access to Hydroxychloroquine At present the trials are ongoing and there isn’t sufficient evidence to conclude whether it will be effective. Science Magazine stated that the available evidence that chloroquine and hydroxychloroquine work against COVID-19 was ‘thin’. The U.S. Society of Critical Care Medicine said “there is insufficient evidence to issue a recommendation…

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Alpha Project

International Lupus Community Reaches First-Ever Agreement on Barriers to Research, Drug Development, Care and Access Findings from a study published  in Lupus Science & Medicine™ provide an actionable framework to advance the lupus field, which has seen many failed clinical trials, variations in care and poor access to care worldwide. The study, “Global Consensus Building…

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Inactivity, Isolation and Impact on Daily Life are Top Concerns for People Living with Lupus

World Lupus Federation issues global report for World Lupus Day highlighting the life-altering effects of lupus and the challenges people with lupus face every day. WASHINGTON, May 9, 2017 /PRNewswire-USNewswire/ — Almost half (43%) of people living with lupus responding to a recent poll* indicated that they worry the most about physical inactivity and social isolation…

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Research Improving Clinical Trial Design

Researchers face multiple obstacles that can hinder their ability to show whether a potential lupus treatment works or may be better than a current treatment. Years of disappointing results in lupus drug development demonstrates that a different approach is needed. In 2009, the Lupus Foundation of America established the LFA Collective Data Analysis Initiative (LFA…

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12th International Conference on SLE

Lupus Education Conference to Provide Updates on Developments in Disease Research and Treatment for Patients, Families and Caregivers Global experts shared the latest developments in Lupus diagnosis and treatment. Lupus Association NSW Inc. was a proud partner and delivered this fantastic opportunity to patients, members and supporters, held last March 26-29, 2017 at the Melbourne…

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