February 2026 Key Lupus Surveys & Data Sources in Australia (Posted 19th Feb 2026) Global Survey on Lupus (2025) – Australian Participation The World Lupus Federation’s 2025 Global Survey includes responses from Australians and highlights major challenges faced by people living with lupus. Key findings include: Nearly half of respondents reported kidney involvement, underscoring the…
31st January 2026 Global Survey on Corporate Reputation of Pharma Lupus Australia, was invited to participate in this year’s PatientView survey on ‘The Corporate Reputation of Pharma’. The survey is one of the few independent studies that captures and analyses insights about the pharma industry directly from patient groups. Extract from the request; “We know how…
27th May 2025 Australian-first lupus treatment at Monash Health In an Australian-first, Monash Health in collaboration with Monash University, has successfully treated a patient with the autoimmune condition lupus with CAR (Chimeric Antigen Receptor) T-cell therapy. “It is absolutely a game changer for the treatment of autoimmune disease,” said Associate Professor Alberta Hoi, Monash Health Consultant…
6th May 2025 Global Survey from World Lupus Federation Finds Nearly Half of People with Lupus Report Kidney Involvement New data highlights urgent need for improved education and diagnosis of lupus nephritis (lupus-related kidney disease), a serious complication of lupus The Lupus Association of NSW, through the World Lupus Federation, is sharing new findings from…
5th May 2025 We’re just one week away from the Lupus Foundation of America’s 2025 National Lupus Advocacy Summit, the nation’s largest lupus advocacy event! One of the best parts about this year’s Summit is that no matter where you are in the world, you can participate to help your elected representatives understand the importance…
7 March 2025 Global Survey on Lupus and the Body, Including Kidney Impact The World Lupus Federation (WLF) and lupus organizations worldwide are conducting the 2025 Global Lupus Patient Survey: Lupus and the Body, Including Kidney Impact to better understand how lupus affects the body, particularly the kidneys. This survey also explores people’s knowledge of…
10 December 2024 Latest Research Opportunity The efficacy of prebiotics and probiotics in reducing ocular signs and symptoms of immune disease-related dry eye. Researchers at UNSW, Sydney (The University of New South Wales) are seeking volunteer research participants to learn about the effect of probiotics and prebiotics on immune disease-related dry eye. Probiotics are live…
29th June 2024 Cutaneous Lupus Erythematosus Clinical Trial (Lavender, Astrazeneca) You are invited to take part in a research study if you have chronic and/or subacute cutaneous lupus erythematosus (CLE) (a medical condition similar to lupus which impacts your skin, hair, and other body surfaces). The research study is testing a new treatment for chronic…
6th May 2024 World Lupus Federation Global Survey Finds 91% of People with Lupus Report Using Oral Steroids to Treat Lupus A recent global survey conducted by the World Lupus Federation reported that 91% of survey respondents were taking or have taken oral steroids to treat their lupus. Over 7,700 people living with lupus from…
26 April 2024 PBS listing of Saphnelo At the March 2024 meeting, the PBAC has recommended the PBS listing of Saphnelo for patients with severe SLE with high disease activity despite standard of care. AstraZeneca is working with the Department of Health to finalise the next steps to enable a timely PBS listing. The Saphnelo…