23 March 2024 Research Opportunity Researchers at UNSW Sydney (The University of New South Wales) are seeking volunteer research participants to learn about the impact of probiotics and prebiotics on signs and symptoms of Sjögren’s syndrome-related dry eye (primary and secondary Sjögren’s syndrome). The study might be a good fit for you if: Are aged…
World Kidney Day 14 March 2024 Did you know that nearly 60% of people diagnosed with lupus will eventually develop lupus kidney disease, known as lupus nephritis? I want to share three reasons why it’s so important: Lupus nephritis is a serious and life-threatening complication of lupus that can affect as many as 60% of…
World-first discovery may enable an effective long-term lupus treatment 06 February 2024 Two years away from clinical trials, the method targets the T-cell in the immune system – offering patients the possibility of a treatment beyond medication and its side effects. Australian researchers have worked out how to fix a defect that causes lupus, and…
27th February 2024 World Lupus Federation – Patient Survey This year’s is currently live and we are requesting your assistance in undertaking this survey. The survey will focus on lupus and steroids to better understand how steroids are used as a treatment in lupus care and to raise awareness about the impact of this treatment…
Community Donations Program Your community. Your vote. Lupus Australia was thrilled to be included as one of the two organisations nominated by CommBank’s Macquarie Centre branch to receive a funding boost from CommBank. As a result of your votes Lupus received $500 from the CBA Macquarie Centre. The Community Donation from the Macquarie Centre Branch…
Community Donations Program Your community. Your vote. Lupus Australia is thrilled to be included as one of the two organisations nominated by CommBank’s Macquarie Centre branch to receive a funding boost from CommBank – but we need your vote! Follow the link below and enter Macquarie Centre to access your local voting options and vote…
Global Survey on Access to Care for People with Lupus The World Lupus Federation (WLF) has created a survey alongside lupus organizations around the globe focusing on access to care for individuals with lupus. The survey aims to better understand challenges to access to care and lupus treatments, as well as raise global awareness of…
March is National Kidney Month, and the Day is Thursday, March 9th. Many people with lupus develop problems with their kidneys, so this day and month of recognition are significant to us and our community. Lupus can cause a kidney disease called Lupus nephritis – inflammation in the kidneys that can make them stop working.…
Lupus Clinical Trial Awareness in Australia Help Advance Lupus Drug Development Many people diagnosed with lupus still have symptoms despite being treated by their doctor. If you have active discoid and/or subacute cutaneous lupus erythematosus (DLE and/or SCLE), you can volunteer to take part in a research study currently enrolling adult participants. Participants who take…
Research Reveals Unique Sub-Groups of Type 2 Lupus (Extract from Lupus Foundation of America) A new study provides insights into the nature of symptoms experienced by people with lupus. While Type 1 and Type 2 lupus models (described below) have previously been identified, the latest research expands upon and refines these definitions, revealing two new…