5th May 2025 We’re just one week away from the Lupus Foundation of America’s 2025 National Lupus Advocacy Summit, the nation’s largest lupus advocacy event! One of the best parts about this year’s Summit is that no matter where you are in the world, you can participate to help your elected representatives understand the importance…
30th April 2025 Athena was diagnosed with Systemic Lupus Erythematosus (SLE), also known as Lupus. We managed it with regular checkups, steroids, and occasional flare-ups, but in August, things began to change. Athena’s kidney function started to decline, and we noticed swelling in her feet. While it initially seemed manageable, our GP’s recommendation to see…
7 March 2025 Global Survey on Lupus and the Body, Including Kidney Impact The World Lupus Federation (WLF) and lupus organizations worldwide are conducting the 2025 Global Lupus Patient Survey: Lupus and the Body, Including Kidney Impact to better understand how lupus affects the body, particularly the kidneys. This survey also explores people’s knowledge of…
7th April 2025 Lupus Fundraising and Awareness Event A fundraising event, is being hosted, to raise funds and awareness for Lupus It is a car, bike and 4wd run from Campbelltown to Kangaroo Valley. This event will take place on Saturday 12th of April 2025. This is the event link : https://www.facebook.com/share/1D4KBxemXz/ A young woman named…
7 March 2025 Women in Life Sciences – Luncheon The Women in Life Sciences Luncheon, co-hosted by AusBiotech and Medicines Australia was held in NSW. The Luncheon, which was hosted on March 7, 2025, brought together over 600 leaders, changemakers, and allies to mark International Women’s Day. This year’s Luncheon embraced the call to #Accelerate…
10 December 2024 Latest Research Opportunity The efficacy of prebiotics and probiotics in reducing ocular signs and symptoms of immune disease-related dry eye. Researchers at UNSW, Sydney (The University of New South Wales) are seeking volunteer research participants to learn about the effect of probiotics and prebiotics on immune disease-related dry eye. Probiotics are live…
29th June 2024 Cutaneous Lupus Erythematosus Clinical Trial (Lavender, Astrazeneca) You are invited to take part in a research study if you have chronic and/or subacute cutaneous lupus erythematosus (CLE) (a medical condition similar to lupus which impacts your skin, hair, and other body surfaces). The research study is testing a new treatment for chronic…
10th May 2024 World Lupus Day Lupus is a global health problem that affects people of all nationalities, races, ethnicities, genders and ages. Lupus can affect any part of the body in any way at any time, often with unpredictable and life-changing results. Important Facts to Know about Lupus: • Lupus is a serious and…
6th May 2024 World Lupus Federation Global Survey Finds 91% of People with Lupus Report Using Oral Steroids to Treat Lupus A recent global survey conducted by the World Lupus Federation reported that 91% of survey respondents were taking or have taken oral steroids to treat their lupus. Over 7,700 people living with lupus from…
26 April 2024 PBS listing of Saphnelo At the March 2024 meeting, the PBAC has recommended the PBS listing of Saphnelo for patients with severe SLE with high disease activity despite standard of care. AstraZeneca is working with the Department of Health to finalise the next steps to enable a timely PBS listing. The Saphnelo…